This
week I went to a small art cinema in Eaux Vives, the area I live in
Geneva, to see the movie "No" by Pablo Lorrain. The film is
about the referendum that the dictator Pinochet in Chile was forced
to organise under international pressure, asking the people for a
mandate to continue another 8 years. The people in the No camp, a
diverse group ranging from communists, dissidents and Christian
democrats, had little time to design a campaign, but were allowed to
broadcast 15 minutes each day on national television. They first made
short movies about the misery of the Pinochet regime, the people that
disappeared and with as concluding message that this should never
happen again and that you should vote no. A young marketing
professional joins the group and tells them it will not work. People
will not want to jeopardize their increase in welfare, will be afraid
to vote or will think that change will not happen anyway. The only
chance for change is to look at the future and come with a message of
hope and humor. After a lot of opposition from within the party (it
is not easy to be joyful when your relatives were killed) and from
outside (secret police) they do a campaign with the slogan 'Chile joy
is coming'. They win, Pinochet has to leave and the rest is history.
Ok,
nice story, but what has this to do with ageing and care you might
ask? I will come to that in a moment. The first step to explain this
is to have a look at the new health policy of the Dutch government.
Essential
element of the newest health reforms in the Netherlands is a
transition from looking at systems to looking at people. There are
not only big differences in health status between people, but also in
their social environment and the degree to which they have control
over their own life. Despite the fact that different people need
different care, we often still give them equal treatments.
The
Dutch health ministry wants to solve that by integrating the existing
systems for curative care, long term care and social support and to
have a much more local and people centred approach in care.
I
brought up this policy in an interesting discussion I had in Geneva
with a close colleague. As I wrote before, we are organising a
meeting with the title "building systems to address functional
decline and dependence in ageing populations". For this meeting
we write few papers, one of which on functional decline when people
get older. The paper summarises the various definitions of frailty,
functional decline and disability and how they relate to the
different forms of care. There are already nice chronological schemes
in the literature connecting different phases in your life to for
example chronic diseases management, long term care and palliative
care. In other words, your degree of dependency determines what care
you need.
In
our discussion we had the feeling that this does not reflect the
recent developments, for example in the Netherlands, to a more
patient centred and integrated care approach. It may be a better way
to start not only from health status but also from the social
environment and personal characteristics of people to get the full
picture. You may then better understand what they need and together
decide on the mix of care that will give best results. The mix of
care must be such that it will contribute to the overall aim of
maximising independence of people over their life course. After all,
it is about people's ability to adapt to ageing.
During
the meeting we may ask participants to reflect on these issues. But
even if we come up with a different format, for me it is interesting
to see that there are many similarities to the new health policy back
home. We could even radically change the title of the meeting. Not
building systems to address decline in people, but building people to
address their decline.
But
what is the link to the film I started with? Well, you need an
optimistic message to change systems. Saying that you will decline
later in life, that you are not able to perform functions anymore,
that you therefore need care and at the very end maybe even
palliative care is not really a hopeful message. Doesn't it sound so
much better that it is wonderful to grow older and that our health
care and support systems will contribute via a personalized approach
to you being as long as possible independent and joyful later in
life. As in the film, the dictator/top down approach should make
place for the benefit of democracy/ the power of people to have more
control over their own lifes. That would be a real revolution! Old
people of the world, joy is coming!
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